To advocate for equal access to quality services and other human rights opportunities by persons with and affected by Albinism in Uganda.
About Our Work
A strong society where persons with albinism are aware of their rights, able to protect them and fully integrated in all aspects of life in Uganda.
Children and adults with albinism in sub-Saharan Africa face multiple challenges which restrict their daily lives. These include visual impairments and extreme vulnerability to skin infections and cancer because they lack melanin in their skin. As a result, almost all die from skin cancer before the age of 40.
People with albinism also face negative attitudes and misunderstanding from their communities and persecution by unscrupulous individuals in search of power and money, because in many parts of East Africa it’s believed their body parts bring great wealth. Limbs, hair and nails are in high demand by witch doctors, and because of this people with albinism often live in constant fear of their lives.
Such challenges mean that people with albinism are often excluded from education and have limited opportunities to earn a sustainable income. They lack access to basic medical care and most don’t have the knowledge or money needed to adequately protect themselves from the sun.
SNUPA in partnership with Advantage Africa is supporting more than 1,000 people with albinism to improve all aspects of their lives including access to improved livelihoods and access to dermatology, vision and other health care services. We are working to help children and adults with albinism to feel safe, accepted and included within their schools and communities.
Our dermatological support in partnership with Ultrasun UK includes access to protective resources including high sun protection factor (SPF) sunscreen and wide-brimmed hats along with regular skin clinics for 1,000 children and adults with albinism.
We have introduced cryosurgery, using liquid nitrogen to remove pre-cancerous lesions from the skin of people with albinism, for the first time in Uganda. This vital work is stopping skin cancer in its tracks!